December 26 Peking time news, report according to 《everyday post 》 in England, British boy wears a virtuous Er of Wei-rice because of to sunlight allergy, every day go out have to wear a specially made protection to take, this makes him misery.Going out a virtuous Er of"whole body armed" rice to only have this year in the daytime is 10 years old, go out every time daytime, all have to"whole body armed":Wear helmet and wear a long sleeve sun protection dress and gloves.Introduce according to the doctor, rice virtuous Er's suffering from the first"dye skin dry disease"(Xeroderma Pigmentosum) is in the world.This is one heredity disease rare in kind, the skin very easily suffers purple outside and only hurt.Because to sunlight extremely sensitive, even if and in the sun foolish several minutes, his skin will also rise water pimple right away.The rice virtuous Er has to have to paint every 2 hour a sun protection index number is 50 sun blocks, even if indoors, this kind of way of doing will also accompany with his whole life.Rice virtuous Er with 31-year-old mother Kai especially-rice virtuous Er,womens sunglasses 50-year-old after father the virtuous Er of John-rice and 13-year-old elder sister thank Luo especially life in five Sis especially county.The windows of their house all receive last the 1 F be named the specially made of "Dermaguard" to defend an ultraviolet ray protection film, this kind of material is in the art art gallery used for protecting oil painting to don't need to encounter sunlight irradiation.Even if is the water tank that puts pet small tortoise, the surface also wrapped the 1 F protection thin film and prevent°froed heating apparatus born and harmful ultraviolet ray.The virtuous Er of John-rice is a nursing personnel, but the Kai is especially a high school first aid the business moderate a member, two artificials make a big body of property homology.John said that the rice virtuous Er doesn't hope that this kind of strange disease becomes oneself in the future live of block a road tiger, want to be like together an age the person is similar normal life.He says:"Each person in the school hopes to be like to wear Wei-he is the only kid who can be an astronaut every day in the school.We have to every moment notice ray level and arrange according to the sunshine strong or weak we the activity in the daytime.""Wearing the Wei is an of ten normal year old boy, can calmly face all these.He always begins in person'armed he', we always need not remind him.Wearing Wei to know it in heart him is different from another kid, for all that, still hope to be like a similar life of other 10-year-old kids.He says to hope to grow up the personnel who can become a nursing like me behind, can open ambulance to save a person in the evening-this is that he is ideal in of occupation.""Small owl" in the mother's eyes is many in the last yearses, the body suffers from the kid of dye skin dry disease to not only need to bear pain and sufferings of body, but also need to receive a cold stare, be seen make is "blood-sucking vampire" or other differents.The Kai says that she is called"small owl" to the son especially:"We all anxiously hope winter of arrival, that time, dark night more long, shorter in the daytime, he can trample scooter to go out to play, need not built-up the package take a stroll everywhere.Some people a will become what a mess, but wear Wei welcome the most happy time for oneself to the mood in winter-he is like a small owl."Dye skin the dry disease is a kind of extremely rare disease, doctor use two and half years time just confirmed a virtuous Er of rice of problem.Although he is to be subjected to premature infant's incubator purple outside bare influence, the family didn't care to the red rash that he appeared on the skin in the beginning.Be born after 8 months, namely in May, 2000, the Kai embraces a virtuous Er of rice especially park, just realize the seriousness of problem.Was foolish under the sun for five minutes, rice the face of the virtuous Er then started becoming one red, the eye pupil summons up, and the Kai sees a form immediately take him to go for a doctor especially.Doctor told them at that time, rice virtuous Er appeared this circumstance just because of expose in the sun of time leads to grow.Fall ill several lead 1/1,000,000 two after month, the rice virtuous Er one family spend a holiday to return, Kai especially rice the virtuous Er embrace out from the car, put on the ground and also use a blanket to cover up the first half body.This time is very short, but rice virtuous Er still Tui a few skin, the whole backs all had a red rash, the Kai feels especially the circumstance being far from good, directly reserving a skin disease expert this time.After a week, they waited until a telephone, man university immediately arrived to add, accept light and live an organization check, test a virtuous Er of rice of skin to purple outside bare reaction.After tossing about of two and half years, the rice virtuous Er is confirmed to get a variation type dye in 2002 skin dry disease.British Bo Ming Han university director from skin disease section in affiliated hospital fills Li second-Doctor Mo Si(Moss Head) said,cheap sun glasses dye skin although the dry disease can not cure of,can change according to the sunlight meticulous arrangement life to take into to control.Doctor Mo Si is the medical group representative director who is responsible for shining on to see a virtuous Er of rice.He said that rice virtuous Er the person who probably is an unique the whole world disease with this kind of situation to torment.She says:"Dye skin the dry disease is a kind of very rare disease, in every 1,000,000 kids, may have one to suffer from this kind of disease."
see more:Our country 5 year thousand odd people the Jing dying abruptly post weariness from overwork excessively fasten main cause
Is Japanese the new version junior high school textbook call Diaoyu Island and only island is Japanese territory
没有评论:
发表评论