The 90% blood friend sufferer didn't accept a norm treatment

"At I 40 years of life in, all memories have relation with bleeding."From keep jade light reasonable rise, he understand, oneself can not be like other boys so run and jump, can not ascend athletics lesson, not ability drive shove.Just ascend during the days in the university, kept jade light crustily the skin of head ascended one section athletics lesson, result one signed settle broad-jump, result in he Kuan joint greatly bleed, he exactly lay for half month on the bed this time."All these, all because I am a hemophilia patient, in China and my similar person is close 100,000, if can not get an effective treatment, we living not equal to dead!"The hemophilia comes from blood in a certain can urge the factor imperfection or decrease that the blood solidifies.A type hemophilia is the most familiar hemophilia type, is because the Ning blood eighth factor imperfection or activity lower to cause.The hemophilia is a kind of for life disease, currently lose to note Ning blood eight factors are the only effective treatment means.After treatment, the patient can be similar to the normal person, create wealth and feed parents a society.Is contrary, hemophilia person once to cripple, will life long become social burden.Therefore, the hemophilia person doesn't should be standing alone to beg to living, the society should give them more care and illuminate the life of their brilliance.Beg rare road very difficult very the difficult situation love hemophilia person is to remould vital process, again is offer social process.Near hemophilia person of 1/4 in the world is in China, but only don't arrive 5% hemophilia persons are accepting a treatment, nearly the sufferer of 90% didn't accept a norm treatment.But is so exactly a little eighth factor, can live big issue of blood;Is exactly to expect to insist a norm treatment at the child, can not take place disable and sick;BE exactly annually only 10-150,000 treatment expenseses, can't stop their to beg to living of road ……but is this to beg to living of road, walk, very difficult very difficult!The house general secretary of Chinese blood friend closes a big wave to tell a reporter, the our country is majority of hemophilia persons, especially the patient of village poor region very seldom arrives to save to cure in time, above 90% will appear a body disable and sick."The drugs are missing, Gao Yao Jia and economy the difficulty is the main reason that results in this kind of present condition."90% many patients because is disable and sick to weigh etc. reason with disease,mens sunglasses mainly depend on parents life.In order to wanting a year to often pay high treatment expenses, housebound to poverty of family not at minority.There is no medicine, the hemophilia life rather dies.But since the second half of 2006, because of blood plasma raw material strain, the jelly of the opposite cheapness dry person Ning blood the eighth factor drugs appear a supply missing, a lot of places even break a medicine.Lack in addition regular comprehensive the treatment also let the patients matter usually doubly achievement half.Keep the jade light deeply has been already realized to this, issue of blood ex- inject eight factors, he need a bottle of medicine, but bleed behind each time again inject, probably will 6 bottle."This disease cures with fight a fire similar, just started being a small fire, probably a water can put out;Want to wait fire to more burn to be more big, have to then much water can put out."Yang Ren Chi of blood hospital in hematology graduate school in the Chinese medical science science, hospital taught to once appeal to the medium, if can carry on prevent°froming sex treatment, these patients completely could live like normal person.This is particularly important for little sufferer of hemophilia.Block hemophilia the person begs to living of the barracks on the road is still far not only these, high because of cost, Chinese 90% many sufferers accepts of is cold blood precipitate and pure transfuse blood the treatment method of syrup.But the fresh blood plasma can not adopt virus to put out to live, because once adopting, various effective composition in the blood will lose effect.So, the promising this way doesn't give the hemophilia the person to spread disease, the key lies in carrying on a strict check to the blood plasma promoter.Yang Ren Chi teaches to sorrily say:"Even if increased many examination methods now,can not ensure the blood 100% safety of promoter, this is the hard nut to crack of the whole world."Therefore, the hemophilia person is infected the moxa Zi contagion paroxysm risks, such as disease and C liver...etc. is biggest.The house of Chinese blood friend once appealed that the national hemophilia person carries on a moxa Zi paroxysm censuses, such as disease, C liver and B liver...etc., but a lot of hemophilia persons were because of fearing not to dare or doing not wish to check.Professor Yang Ren Chi says that injecting a gene reorganization the eighth factor can lower the risk of virus infection on the biggest degree, but its price is higher, add of national big parts of regions haven't formally brought into to cure to protect it, patient's economy bears a little bit greatly, consequently far have never made widely available to use.We want for you keep on living at present, keep jade only is already the president of association of house of Chinese blood friend, he has much of emotional stirrings ground to tell a reporter, our these people is difficultly on the hoof, be want to fight for for those and our similar kid, Be different from us to live like this.Really, drive the hemophilia person's existence present condition the touch, the kind step is in "on all side rush through" now.Since June, 2009, the China kind head quarter developed the activity of helping of hemophilia child in the whole country, is 2-18-year-old hemophilia baby patient free endowment part treatment drugs, make these baby patients get a norm treatment thus, avoid a development for disable and sick.Up to till February, 2010, the head quarter has already helped 132 baby patients in 22 cities in the whole country, there are among them also 10 coming from protecting low family.The China medical science meeting blood credit meeting chairman of committee, the Chinese engineering, hospital academician's Ruan long Geng professor compliment way, the item of China kind head quarter, let the baby patient get a prevention treatment since the childhood, can be similar to the normal kid to study, life, to society similar will do a contribution, the social meaning is very big.The reporter calculated a Zhang, at existing cure to protect policy and charity party contributory of common help under, the baby patient's treatment expenses has already significantly lowered.In Guangzhou, if the hemophilia child takes part in this item, everybody by himself[herself] annually need paying expenses is about 40,000;In Guiyang, if make a diagnosis and treatment at the x-rated hospital, everybody yearly expenses is about 55,000 dollars, make a diagnosis and treatment at the second class hospital, the expenses is or so for 30,000 dollars.The expenses difference of the of different region mainly comes from to cure to protect to cure the dissimilarity that the medicine submits an expense accounts a proportion to the hemophilia everywhere.Move oneself first to move government again.Kind head quarter in Xiamen is further on this foundation, led off in Xiamen to carry out whole free treatments to all hemophilia baby patients.Their way of doings are inside the industry called "mode in Xiamen", they pass to raise to the business enterprise and brought trouble son to pay to cure to protect and the charity make a contribution to outside of all medicine fees, also carry on a communication with related section in Xiamen City, developed green passage at the fixed-point hospital for hemophilia person, seek medical advice to take a medicine at any time;Combine built up unified register file management system;Kind head quarter in Xiamen and bureau public health moderate and founded at the x-rated hospital to prescribe for and went to the precedent that the second class hospital takes a medicine, thus convenience the patient's daily treatment.The hemophilia is used a medicine isn't the total amount of out-patient services control scope, according to service item balance of accounts, also relieved a curing of hospital to protect burden thus, make the doctor able to betterly contribute efforts to the person of hemophilia.Though benevolence and charity help parts of hemophilia persons acquire a regular treatment to some extent, in the national level, hemophilia the person's problem didn't get basic solution, the hemophilia person truely begs to living itWhere is the road ?They again should what should one do?30 years of old wish should carry out an economic factor is the root reason that results in Chinese the hemophilia person's present condition.The Ruan long Geng academician points out that"to hemophilia over 18 years of age person, press to need to cure for medicine;But to 18 years old the hemophilia child as follows, must be concerned with ? in advance, as early as possible give the prevention the treatment.The our country contains a lot of kids who suffer from hemophilia and lost the ability of normal sport before adulthood and joined housebound to cripple of troops, let people deplore greatly."Give to prevent°from sex treatment to Chinese hemophilia child is my dream of 30 in the last yearses.Ruan grow Geng academician have regrets ground to 《life Times 》reporter say, "1979 I to France study, for the first time take part in French hemophilia baby patient of summer camp, they and normal kid similar dozen basketball, because they get prevention treatment and medical science education, everybody all have self-providedly inject machine and eight factor medicines, in case of get hurt feel want issue of blood, meeting oneself inject, therefore these kids all have no joint abnormal.But I see the hemophilia sufferer of China, the all relevant stanza was disable and sick at that time."The research of child hospital in Peking expresses that the 80% or so hemophilia sufferer starts joint issue of blood at the age of 3-6, the almost relevant stanza of patient over 12 years of age transforms, because of disable and sick result in of economic loss, plus displacement artificial the expenses needed by joint, is farer far high than to prevent°from the cost of sex treatment.Therefore, early diagnose, early cure very necessary, let more sufferers get into regular treatment system is also an urgent matter of the moment.The bottleneck that can carry on a norm treatment lies in the treatment cost of hemophilia Gao, and cures to protect to bear a proportion opposite and lower, the patient is unbearable.The data suggests that in Japan, the national insurance pays 70% expenseses for person of hemophilia, 30% expenseses leave, from the government pediatrics research fund, the government Ning blood the factor study fund, the government costliness medicine all of the fund pay.In Korea, 80% medicine fees are undertaken by the national health insurance, leave of in 20%, to the poor sufferer, all of the government pay, other sufferers are born 10% by Korean hemophilia foundation, sufferer by himself[herself] undertake 10%.But our country existing agency's protecting system still can not promise the full treatment of majority of sufferers.2005 although it is said, our country jelly dry person Ning blood eight factors bring into a nation to cure to protect A category to record, 2009, reorganize Ning blood eighth factor, be also brought into to cure to protect B category to record.But the reality is, "the jelly do person Ning blood the eighth factor urgently lack and reorganize Ning blood eight factors is used not to rise."Keep jade to only tell a reporter, supplying ample reorganization Ning the blood is eight factors, because the price is expensive, and be like haven't taken it into city drugs to submit an expense account catalogue so far in Peking City, the hemophilia person basically has no dint burden."If can reorganization Ning blood eight factors bring into national A to cure to protect to record,Women D&G Sunglasses the circumstance will change a lot."Hemophilia the person's medical guarantee is getting more people's concern.Ruan long Geng the academician think, at our country, curing to protect an overlay can not make a knife to slice.Our country the thing department economy in the region still exist greater difference, economic flourishing region at guarantee according to need the foundation for curing up, should actively unite the prevention treatment that the social strength develops child's sufferer, and will reorganize eighth factor to bring into A to cure to protect to submit an expense account to record to promise baby patient's best prevention treatment effect, the biggest degree lowers disable and sick occurrence.Believe dynasty on the first, the hemophilia person of China can also accept a free treatment and possess the right of similar to the normal person happy life.Good news probably come quickly.Recently, the national health department started "the hemophilia disease management system", will pass to build up whole country and 31 province classes a hemophilia information management center, practice one by one register to the hemophilia case system with touch pure our country hemophilia sufferer basic information and the Ning blood factor medicine application circumstance, change currently our country hemophilia sufferer's norm make a diagnosis and give treatment to lead low present condition.


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